Developing a Young Persons Advisory Group (Ypag) to inform the design of a study to improve pre-hospital pain management for children and young people (Cyp)
| dc.contributor.author | Whitley, Gregory Adam | |
| dc.contributor.author | Siriwardena, Aloysius Niroshan | |
| dc.contributor.author | Redsall, S A | |
| dc.contributor.author | Lord, B | |
| dc.contributor.author | Tanveer, H | |
| dc.contributor.author | Bujor, T | |
| dc.contributor.author | Maitland, E | |
| dc.contributor.author | Townell, R | |
| dc.date.accessioned | 2023-05-20T14:28:31Z | |
| dc.date.available | 2023-05-20T14:28:31Z | |
| dc.identifier.citation | Whitley, G A et al., 2022. Developing a Young Persons Advisory Group (Ypag) to inform the design of a study to improve pre-hospital pain management for children and young people (Cyp). BMJ Open, 12 (S1), A2-A3. | en_US |
| dc.identifier.issn | 2044-6055 | |
| dc.identifier.doi | https://doi.org/10.1136/bmjopen-2022-EMS.5 | |
| dc.identifier.uri | http://hdl.handle.net/20.500.12417/1463 | |
| dc.description.abstract | Background Patient and public involvement is an integral component of clinical research. A YPAG is group of young people with active involvement in the design and conduct of clinical research aimed at CYP.1 2 Active collaboration with a YPAG can be mutually beneficial and can have a positive impact on study design and conduct.2 3 We report on the involvement of young people, their influence on study design and the perceived benefits to members. Method A UK secondary school was approached and ten 16- 17 year old students agreed to form a YPAG. Three 1-hour sessions were planned involving arts-based activities to explore key challenges, predetermined iteratively by the research team. Activities involved group work to explore and propose solutions for effective CYP recruitment and data collection, produce a study logo and review the plain English summary. Results YPAG members produced insightful arts-based posters containing important ideas and concepts that were incorporated into the study design. A study logo was created, diaries and electronic communication methods to collect data were added and a variety of age-based leaflets were added to the recruitment strategy. Members reported several benefits from the sessions, including enhanced creative and problem-solving skills and members enjoyed the teamwork and collaborative approach. Conclusion YPAG involvement resulted in meaningful improvements to research design and members gained new knowledge, transferrable skills and improved confidence. This experience should help inform YPAG involvement in future research. https://bmjopen.bmj.com/content/bmjopen/12/Suppl_1/A2.2.full.pdf This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ DOI http://dx.doi.org/10.1136/openhrt-2015-000281 | |
| dc.language.iso | en | en_US |
| dc.publisher | BMJ | en_US |
| dc.subject | Young Adult | en_US |
| dc.subject | Schools | en_US |
| dc.subject | Emergency Medical Services | en_US |
| dc.subject | Patient and Public Involvement (PPI) | en_US |
| dc.subject | Children | en_US |
| dc.title | Developing a Young Persons Advisory Group (Ypag) to inform the design of a study to improve pre-hospital pain management for children and young people (Cyp) | en_US |
| dc.source.journaltitle | BMJ Open | en_US |
| dcterms.dateAccepted | 2022-05-01 | |
| rioxxterms.version | NA | en_US |
| rioxxterms.licenseref.startdate | 2023-04-26 | |
| rioxxterms.type | Conference Paper/Proceeding/Abstract | en_US |
| refterms.panel | Unspecified | en_US |
| refterms.dateFirstOnline | 2022-05-01 | |
| html.description.abstract | Background Patient and public involvement is an integral component of clinical research. A YPAG is group of young people with active involvement in the design and conduct of clinical research aimed at CYP.1 2 Active collaboration with a YPAG can be mutually beneficial and can have a positive impact on study design and conduct.2 3 We report on the involvement of young people, their influence on study design and the perceived benefits to members. Method A UK secondary school was approached and ten 16- 17 year old students agreed to form a YPAG. Three 1-hour sessions were planned involving arts-based activities to explore key challenges, predetermined iteratively by the research team. Activities involved group work to explore and propose solutions for effective CYP recruitment and data collection, produce a study logo and review the plain English summary. Results YPAG members produced insightful arts-based posters containing important ideas and concepts that were incorporated into the study design. A study logo was created, diaries and electronic communication methods to collect data were added and a variety of age-based leaflets were added to the recruitment strategy. Members reported several benefits from the sessions, including enhanced creative and problem-solving skills and members enjoyed the teamwork and collaborative approach. Conclusion YPAG involvement resulted in meaningful improvements to research design and members gained new knowledge, transferrable skills and improved confidence. This experience should help inform YPAG involvement in future research. https://bmjopen.bmj.com/content/bmjopen/12/Suppl_1/A2.2.full.pdf This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ DOI http://dx.doi.org/10.1136/openhrt-2015-000281 | en_US |