Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper

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Author
Gallier, Suzy
Price, Gary
Pandya, Hina
McCarmack, Gillian
James, Chris
Ruane, Bob
Forty, Laura
Crosby, Benjamin
Atkin, Catherine
Evans, Ralph
Keyword
Emergency Medical Services
Information Management
Medical Informatics
Health Care
Information Systems
Journal title
BMJ Health & Care Informatics

Metadata
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URI
http://hdl.handle.net/20.500.12417/1125
DOI
10.1136/bmjhci-2020-100294
Abstract
Health Data Research UK designated seven UK-based Hubs to facilitate health data use for research. PIONEER is the Hub in Acute Care. PIONEER delivered workshops where patients/public citizens agreed key principles to guide access to unconsented, anonymised, routinely collected health data. These were used to inform the protocol. https://informatics.bmj.com/content/28/1/e100294 This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. http://creativecommons.org/licenses/by-nc/4.0/ DOI http://dx.doi.org/10.1136/bmjhci-2020-100294
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