Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper

Gallier, Suzy; Price, Gary; Pandya, Hina; McCarmack, Gillian; James, Chris; Ruane, Bob; Forty, Laura; Crosby, Benjamin; Atkin, Catherine; Evans, Ralph; Dunn, Kevin W.; Marston, Eliot; Crawford, Clark; Levermore, Martin A.; Modhwadia, Shekha; Attwood, John; Perks, Stephen; Doal, Rima; Gkoutos, Georgios; Dormer, Richard; Rosser, Andy; Fanning, Hilary; Sapey, Elizabeth

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Abstract

Health Data Research UK designated seven UK-based Hubs to facilitate health data use for research. PIONEER is the Hub in Acute Care. PIONEER delivered workshops where patients/public citizens agreed key principles to guide access to unconsented, anonymised, routinely collected health data. These were used to inform the protocol. https://informatics.bmj.com/content/28/1/e100294 This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. http://creativecommons.org/licenses/by-nc/4.0/ DOI http://dx.doi.org/10.1136/bmjhci-2020-100294

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