Data quality and 30-day survival for out-of-hospital cardiac arrest in the UK out-of-hospital cardiac arrest registry: a data linkage study
Rajagopal, Sangeerthana Booth, Scott Brown, Terry P. Ji, Chen Hawkes, Claire A. Kirby, Kim Black, Sarah Spaight, Robert Gunson, Imogen
Rajagopal, Sangeerthana
Booth, Scott
Brown, Terry P.
Ji, Chen
Hawkes, Claire A.
Kirby, Kim
Black, Sarah
Spaight, Robert
Gunson, Imogen
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Abstract
Objectives The Out-of-Hospital Cardiac Arrest Outcomes
(OHCAO) project aims to understand the epidemiology and
outcomes of out-of-hospital cardiac arrest (OHCA) across
the UK. This data linkage study is a subproject of OHCAO.
The aim was to establish the feasibility of linking OHCAO
data to National Health Service (NHS) patient demographic
data and Office for National Statistics (ONS) date of death
data held on the NHS Personal Demographics Service
(PDS) database to improve OHCAO demographic data
quality and enable analysis of 30-day survival from OHCA.
Design and setting Data were collected from 1 January
2014 to 31 December 2014 as part of a prospective,
observational study of OHCA attended by 10 English
NHS Ambulance Services. 28 729 OHCA cases had
resuscitation attempted by Emergency Medical Services
and were included in the study. Data linkage was carried
out using a data linkage service provided by NHS Digital,
a national provider of health-related data. To assess data
linkage feasibility a random sample of 3120 cases was
selected. The sample was securely transferred to NHS
Digital to be matched using OHCAO patient demographic
data to return previously missing demographic data and
provide ONS date of death data.
Results A total of 2513 (80.5%) OHCAO cases were
matched to patients in the NHS PDS database. Using the
linkage process, missing demographic data were retrieved
for 1636 (72.7%) out of 2249 OHCAO cases that had
previously incomplete demographic data. Returned ONS
date of death data allowed analysis of 30-day survival
status. The results showed a 30-day survival rate of 9.3%,
reducing unknown survival status from 46.1% to 8.5%.
Conclusions In this sample, data linkage between the
OHCAO registry and NHS PDS database was shown to be
feasible, improving demographic data quality and allowing
analysis of 30-day survival status.
https://bmjopen.bmj.com/content/bmjopen/7/11/e017784.full.pdf
This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
http://dx.doi.org/10.1136/bmjopen-2017-017784